40 Under 40: Teresa Thurtle, Founder, ALS Advocate and Policy Analyst, Bottoms Up to Down ALS

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Teresa Thurtle

Thu, Mar 28, 2024 (2 a.m.)

Teresa Thurtle is a leader in advocacy for those affected by ALS, otherwise known as Lou Gehrig’s disease. With a PhD in public policy, two master’s degrees and two bachelor’s degrees, Thurtle is well-equipped to champion ALS research, navigate business structures, coordinate partnerships and lobby for veteran and military causes.As a disabled veteran with a known ALS gene, Thurtle has a profound passion for the cause that she channels into a unique ability to develop compelling narratives that she can then use to influence politicians, researchers and the public. “In the next 5-10 years, I look forward to a treatment or cure for ALS,” said Thurtle. “The science is almost there.”

Last year, Thurtle advocated for ADA accessibility on commercial aircraft, testifying before the U.S. Senate Committee for Commerce, Science and Transportation. Her efforts have influenced policies including the Accelerating Access to Critical Therapies for ALS Act, the Right to Try Act and the Steve Gleason Act.

Thurtle loves to travel and has visited all seven continents. She also runs Ragnars, enjoys watching the Dodgers and Vegas Golden Knights, and can be found at local eateries HUDL Brewing Company and McMullan’s Irish Pub.

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